Autism Society Celebrates … Ben Affleck?

Celebrities are good for fund raising. Autism Society is backing “Aut Fest,” an autism-related film festival. The good news: The latest anti-vax film isn’t on the schedule that I can see. The bad news: Autism Society is banking on Ben Affleck bringing in the big bucks.

Affleck played The Accountant, an autistic hitman whose character depended heavily on multiple layers of damaging stereotypes about autistic people.

Read Kim Sauder:

Let’s start by looking at the character Christian Wolff (Ben Affleck). They present the character as an edgy, unique autistic character who is different from other autistic characters that people have seen on screen before. This is why he is

A white male, unlike Raymond Babbitt, that kid from Mercury Rising, or Hugh Dancy’s character in Adam… Oh wait.

The vast majority of portrayals of disability not exclusive of autism are of white men. This is problematic in that it erases a visual representation of the huge diversity within the disabled population.

An autistic savant, unlike Raymond Babbitt, that kid from Mercury Rising, or Hugh Dancy’s character in Adam… Oh wait.

I’m pretty sure that I’m not the only autistic person who wishes that Hollywood would put a moratorium on autistic savant characters. Savantism is rare and does not accurately represent the average lived experience with autism. In film and television the opposite is apparently true. Autistic people who are not savants are basically an endangered species.

Or read Alex Hagaard:

The Accountant most assuredly is an honest depiction of autism — but it is an honest depiction of what autism looks like through the eyes of humans who are allistic . . . that is, not autistic themselves. As such, it is a painful and often stereotypical rendering of a character who is constantly and explicitly signified as Other.

For the duration of the film’s 128-minute runtime, we are treated to the cold spectacle of a man whose human qualities are confined to a minimum. His face is uniformly mask-like; he exhibits no sign of a life outside the confines of his work (and of the plot); he doesn’t even bleed when punched in the face. A number of motifs do the unsubtle work of reminding the audience that Chris is not one of us.

I’ve been thinking a lot about Speechless. It’s not perfect. No work of cultural creation is perfect, especially when engaging in complex intersections of identity and agency. But it starts and ends with trying to make sure disabled people finally take control of their own narratives, in so many ways. As I wrote for Pacific Standard, I think the tightness of the genre (family sitcom) helps. Similarly for Switched at Birth or Spring Break Zombie Massacre.

I’m sure there’s an autistic-hitman movie that could similarly exploit the tightness of the genre to tell new stories about disability.

The Accountant isn’t that movie. Ben Affleck as headliner is a sign of going for the bucks, going for things that make donors and parents happy, at the expense of the autistic community.

UPDATE:

Let me know if other autistic writers comment.

Restaurant Photos without Consent … again

There’s a photo of an employee feeding a disabled woman in an Illinois IHOP which means it’s time to resurrect two favorite How Did We Get Into This Mess? rules:

  1. Don’t take pictures of disabled strangers without their consent.
  2. Don’t share the pictures you shouldn’t have taken to the internet without their consent. Their story is not your story to do with as you see fit.

Latest culprit: Keshia Dotson, who snapped a picture and is happily reaping the attention, as stories percolate around local news, always looking for an inspirational angle. I once wrote about a similar incident:

In objectifying this woman, as writer and disability activist Emily Ladau points out in a piece for the Center for Disability Rights, the stories all ignore the woman’s personal agency. “The woman is not helpless. She specifically requested assistance with eating,” Ladau writes. “She advocated for what she needed. The employee’s assistance was simply a kind acknowledgment of her request. [The comments] regarding the man are all to the effect of “bless his heart,” “what a hero,” “such a saint.”

One reporter led his piece on the Qdoba story with, “Faith in humanity, restored.” 

Real support

Then there are the legal and policy questions. Why is Qdoba not accessible to disabled patrons in the first place? No one should have to wait outside a door to be let in. And shouldn’t Kentucky provide appropriate community-based supports for this individual so a disabled woman can lead a more independent life rather than rely on the kindness of strangers?

Here I think the answers aren’t that complicated. T. here seems to be a relationship between this husband and wife and the server in question. That’s lovely. Ask for consent before posting.


——————————

I spoke to Dotson over FB messenger:

Me: did you ask their permission before taking the photo?

Keshia
I did not, I honestly didn’t even think about it. I just wanted to forward it to corporate so the server would be recognized for his customer service skills, I never dreamed that it would go viral like it did.

David
After it went viral, did you reach out to the disabled person if they wanted people to see them being fed? Or to the server?

Keshia
I have not spoken to either, no.

David
A lot of disabled people are criticizing you for violating this woman’s privacy. I wonder if you have any thoughts about that? Would you want such an intimate vulnerable moment shared without your consent?

Keshia
No harm was meant, it was a gesture intended with the up most innocence. But I have to get back to work, thank you for your interest in the story.

David
Right. But those disabled people would like you to take that picture down or get consent to share it.

——————————-

The picture is still up.

Once again: Do not take pictures of disabled people without consent. Do not share pictures you shouldn’t have taken on social media without consent.

Coroner Blames Autism. for the death a Latino Autistic Student held Upsidedown

Anthony Corona died after being placed with his head between his legs for twelve minutes. In the aftermath, the coronor at least partially blamed autism for his death.

Following a physical confrontation with another student and after school employees’ attempts to restrain Corona failed, the bus driver pushed the teen’s shoulders down, forcing his head between his legs, for 12 minutes until he stopped breathing, a San Bernardino police report stated. He died in the hospital a short time later, officials said.

Authorities concluded the death was a homicide, which means “death at the hands of another, but not necessarily implying intent or culpability,” states a coroner’s report provided by the family’s attorney Dale Nowicki. His death resulted from “positional asphyxia,” meaning he was put in a position where he couldn’t breathe for several minutes, according to the San Bernardino County Sheriff’s Department Coroner Division and San Bernardino police Lt. Mike Madden. Corona’s autism and mental retardation contributed to his death, a coroner’s report states.

I’m looking for the actual report, but this trend of blaming a diagnosis, rather than the violence visited on the disabled body,  is both pernicious and pervasive. This kind of restraint is lethal far too often to far too many people, and in the aftermath, medical and law enforcement authorities fixate on the disability rather than the action (even should the action be justified). See both Ethan Saylor and Eric Garner for widely publicized examples.

More to come.

Trauma in Chicagoland

Post Traumatic Stress Disorder (PTSD) needs to be understood as disability for many reasons. First, it’s a disability, requiring numerous varieties of interventions and accommodations. Second, it’s incredibly common, so when we understand it as disability, it challenges our notion of normal, whole, or abled. These are lines we need to blur.

From Chicago Tribune, here’s a new study on trauma and black women in Chicago.

A recent Northwestern Medicine study that examined the South Side neighborhood of Oakland found that 29 percent of the 72 African-American study participants have the disorder and an additional 7 percent exhibited a large number of signs that are part of a PTSD diagnosis. Researchers said they believe that points to a need for more mental health services and screenings in poor neighborhoods.

This isn’t news, but more data is important as advocates work for better trauma-informed practices among government agents.

Of course, when Chicago got a million dollars recently to address trauma in the neighborhoods, they spent almost all of it on new cops.

Shock and Law: Tasers and the Cult of Compliance

The State of CT mandates the tracking of taser use by law enforcement, which is fairly rare across the country. We’ve got the 2015 numbers. From Connecticut Magazine:

A total of 650 reported Taser incidents involved 610 people. Of those subjected to Taser use in 2015:

83 percent were unarmed
53 percent were people of color
49 percent were under the influence of drugs or alcohol
33 percent were described as “emotionally disturbed”
13 percent were suicidal
Two died

When involved in Taser incidents, including instances when a Taser is drawn but a shock is not delivered, people of color were more likely to be shocked and less likely to be given a warning before being shocked than whites.

The state of CT found that 100% of these taser uses were justified, and that’s where the problem lies. Such weapons are an important tool for law enforcement, but too often they are used not in lieu of lethal force (it’s better to tase than shoot!), but in lieu of patience and conversation. The people who suffer from this the most are people of color, disabled individuals, and especially disabled people of color.

Policing the Police
McGuire says, in Connecticut, all the Taser investigations “have vindicated the officers and found no police misconduct.” But there are cases in which justification of Taser use is unclear, he says. “A few years back, in Middletown, a person who was in mental health crisis was [shocked] 34 times by three different officers, and that was deemed a justifiable use of force and ultimately the officers were exonerated.”

Accountability must be part of reform. Data serves accountability, so I’m glad they are counting.

The Bipartisan History of Disability Rights

Yesterday I wrote on the Endrew F. v Douglas County decision from the Supreme Court. It’s powerful and could make a real difference in special education in this country. In the meantime, though, even as the decision was being handed down, ADAPT (a direct action disability rights group) was occupying the Capitol Rotunda, chanting, and eventually being arrested. I wrote a piece about SCOTUS, Gorsuch, and ADAPT, while remembering all the ways that disability rights can and should be bipartisan.

For decades, Democrats and Republicans have come together to pass legislation and support regulations to make America more inclusive for people with disabilities. Not only did a Republican president (George H.W. Bush) sign the ADA in 1990 after it passed with overwhelming majorities, but the same congress and president easily reauthorized the Education for the Handicapped Act and renamed it IDEA. A Republican congress reauthorized the same bill under President Bill Clinton, in 1997. In 2008, President George W. Bush signed the ADA Amendments Act, passed by a Democratic congress, which explicitly expanded ADA protections to people with mental disabilities. President Barack Obama signed a law permitting some disabled people to work and save money without jeopardizing access to benefits, and another encouraging integrated work opportunities for disabled people. These were both passed by huge margins in the otherwise highly partisan 113th and 114th congresses.

Read the whole piece here.

Disability Day of Mourning – Washington D.C. – 2017

“Katherine Lavoie spent the last moments of her life with her husband pointing a gun at her. Olivia Clarence was four years old, and the last thing that will ever happen to her was her mother cutting off her air. Olivia’s brothers, Ben and Max, ended their lives the same way. They were three years old.”

Julia Bascom, executive director of the Autistic Self Advocacy Network, reads these words from a sheet of paper that she holds in steady hands. Her voice is quiet, but it carries through the meeting room of the National Transitions Youth Center, a small office building near Foggy Bottom in Washington, D.C. Bascom seems tall in her black dress, almost ministerial, as she leads a small congregation of mourners in a ritual of shared grief. It’s March 1st, 2017, the Disability Day of Mourning, and we’re about to recite the names of the dead.

I wrote for Pacific Standard on murder of disabled people and the way the victims are erased from their own stories, based on my visit to DC and the Disability Day of Mourning this year, plus the Ruderman Foundation white paper on filicide.

Julia the Muppet: Then and Now

Sesame Street moved Julia, a muppet whose character is autistic, from online only to the TV screen, and the story consumed a lot of my Twitter space. People are all happy she exists. People were happy when they announced her. I’ve seen lots of optimism, including from many, many, autistic people.

But that doesn’t mean there aren’t issues. One of my opening thoughts was that everything was focused on neurotypical kids learning about autism, rather than using Julia to help provide role models for autistic kids. Sesame Street has, of course, always been about diversity, and has always (well for a long time) included disability in their diversity.

But there are some issues, especially with the website, and we need to ask these questions: Does Julia speak or is she spoken for? Who is the subject here? Who is the expected audience?

Here’s two things to read from writers who ID as autistic/neurodiverse AND as parents.

These are my stones. This website is not good. There’s too much that’s bad tipping the scales toward ableism and stigma. I hope Sesame Street listens. I think they can still fix this. Go back to the drawing board (literally and figuratively) with Julia, scrap everything else. Yep, scrap it. You made an autistic muppet, awesome. I love that she does happy flapping and loves to sing. Make her a real muppet. Make her part of the Sesame Street family. Let her talk instead of just talking about her. Let autistic kids see their reflection in her and feel that they are real people too, not monsters. Let them tell their own stories. Sesame Street has always known how to let kids be kids and they can do it again, and they can start now.

And now here is Biannon Lee:

Lee writes:

  • Articles are suggesting that in the full episodes, it is the adults on the show and the muppet friends who describe autism and Julia’s needs to others. I really want so much for children to be able to describe what autism means to them and it’s sad if it does turn out that the adults and other kids talk for Julia in the show.
  • The Sesame Street and autism resources on their website haven’t changed and are still just as icky as when autistic people criticised them in 2015. My advice is to steer clear of Sesame’s website.

And Lee concludes:

I am really hoping autistic Julia is someone we can love, who is accepted and valued for being autistic, and not someone who gets talked over by her friends and adults in her life.

So, it’s good to see Julia on air, but plenty of ways in which Sesame Street promotes ableist narratives rather than resists them.

There Ain’t No Good Eugenics

Adam Cohen is the author of Imbeciles, an recent, widely read, book on the history of eugenics in early 20th century America. It’s a solid book that about a history that isn’t well known, and I’m glad he wrote it (though I am not sanguine about the movie deal based on it, but that’s not his fault and is a separate story). 

What I’m not glad about is his recent op-ed in the L.A. Times on “good eugenics,” which seems to miss the lessons of the history he synthesizes in his book. His thesis in the op-ed seems to  be: Due to cheap gene editing, eugenics is coming, but that might not be bad? He writes:

As a practical matter, though, the genie is already out of the bottle, and it is unlikely we could stop embryo editing if we wanted to. New advances are coming rapidly, and gene editing is only becoming easier, faster and cheaper.

Again, that need not be a bad thing. Twentieth century eugenics has rightly been called a “war on the weak” — its goal was to stop people with conditions like Huntington’s disease from reproducing. Twenty-first century eugenics can enable people with the Huntington’s gene to have children without it. The new eugenics can be a war for the weak.

The whole thing reads to me like a pitch to sell more copies of his book, now out in paperback. I get it. I, too, am finishing a book and hope to sell many copies. But I think he’s taken precisely the wrong lesson from the history – an ableist regime, whether based on forced sterilization or gene editing, will always reflect the oppressive biases of the society that constructs it.

America – like most of the world – kills, incarcerates, and abuses its disabled citizens, especially those who are multiply marginalized by race, class, gender, sexuality, religion, or other categories of difference.

Any eugenic gene editing process that is constructed in our culture will reflect the ableist reality in which they are created.

In the future, disability will code for poverty, for non-white, for non-Western, and the oppressions will intensify.

I am not an optimist, even as I rally to fight against this future.